I’m thrilled to share that I am flying out today to attend the Allergy and Asthma Foundation of America’s (AAFA) Patient Speaker Workshop. I’ve been invited to learn how to share my food allergy and asthma story with the media at this workshop. I’m secretly hoping I will meet, face-to-face, some of the amazing food allergy and/or asthma advocates I’ve met virtually this year. I am truly excited the valuable skills I will learn for my food allergy and asthma advocacy work.
Learning how to clearly share my story (which actually is our story) with the media and community is exactly what I need right now. I’ve been interviewed many times before and each time, I felt like I didn’t say enough, said too much or simply sounded like a fool. I feel that I’ll finally receive good instruction and maybe, just maybe, I can present our food allergy and community truly the way I hope each time!
I am extremely grateful for AAFA for providing me with this golden opportunity. They have been my guiding light since the beginning of my food allergy and asthma journey! I used their Support Group guidelines when forming our local food allergy and asthma support group and constantly refer to the AAFA website for resources, such as information regarding asthma control, food allergies, indoor and outdoor allergies, advocacy and educational resources. Their support guidelines are key, successful and priceless. I highly suggest every food allergy or asthma support group out there to visit their website! I recall even finding instruction on ways to set up the room for a support group meeting! I love every bit of their information-clearly!
Another fabulous bonus: tomorrow morning, before the workshop, I will enjoy breakfast with a long time food allergy and asthma mom and child who have since moved away from Reno! Can it get any better than this? We miss them dearly as we had our first Food Allergy Halloween party without their shining faces!
I’ll report back regarding what I learn at AAFA’s Patient Speaker Workshop!
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