Today, the National Allergy and Anaphylaxis Council (NAAC) formally launches into our life threatening food allergy and anaphylaxis world. This group is comprised of advocates who all share the same vision: to join forces in becoming one voice to advocate for safety, inclusion and to become a hub of advocacy information. Their website describes the NAAC’s mission, “We are a collective voice of leading advocates and professionals from across the nation. We raise awareness regarding food allergies and anaphylaxis and advocate for the fair treatment, inclusion, and safety of those diagnosed with this hidden disability”. I had the honor of witnessing, up close and personal, this council form. I have not been this humbled in a very, very long time.
I was invited to join this outstanding group of women, (not limited to women though, gentlemen please join us), as they formed. Unfortunately, I have been completely absorbed in my own stock epinephrine legislation and family life, so I have contributed very little to the recent impressive formation of this council. Just a few short weeks ago, a group of advocates began conversations when the nick mom™ “Bake Sale” incident took place. In addition to leaping to action this group confirmed the need for advocates and those seeking fair treatment, inclusion, safety and advocacy to have access to each other. As a community, we are our own best resources. My state has benefited from information shared from other advocates in other states, I was also in need of a tool help me find others working on similar issues.
I am in complete awe in how quickly and professionally NAAC created their mission statement, by-laws, articulated community needs, shared ideas, created a logo, designed a website and worked together/ Even more inspiring, NAAC has created a Pledge that we are all invited to join in our work towards creating a better world for those managing and living with life threatening food allergies and anaphylaxis. We are all invited to join our voices together. When I look back at the resources available 12 years ago when my son was diagnosed to this very moment in time, I smile. We’ve come a long way and with each day we take steps closer towards a cure, inclusion, education and safety.
Please consider visiting the National Allergy and Anaphylaxis Council website and checking out The Pledge. This might be what you have been looking for?!?!