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I am the change -Leila

List of Each State and their Stock Epinephrine in Schools Status

US Map of Anaphylaxis Legislation

Hot Topic!

In Nevada we are working hard on SB453 to secure stock epinephrine in Schools!  You can make a difference with us by…

Monday, April 1st, 2013

Please see below and consider a quick email to our Senators who comprise the Senate Health and Human Services Committee.

Friday, April 4th, 2013…

Success!  Yesterday’s hearing with the Senate Health and Human Services (HHS) Committee was terrific!  Senator Smith presented the Legislation to the committee and then the food allergic community rallied from all ends of the state to provide a balanced and well presented line up of testimony.  Supporters of SB453 Epinephrine in Schools were out in force and wore stickers on their lapels.  Very enlightening was the serious concern from the Senate HHS Chairman Justin Jones, who had the room wiped down before children with food allergies arrived and then posted signage directing hearing attends to refrain from eating nuts before he made an announcement verbally before the session began!
Now there is a legislator who gets it!
I will most over this weekend, I’m tad tired right now and need to head to my daughter’s school for some good volunteer time!

Monday, April 1st, 2013…

Call to action:  Email folks on the Senate Health and Human Services Committee and urge them to support SB453.   Below are the details on how you can help.

How you can make a difference within a few minutes (and before this Thursday, April 4th, when we have our first hearing): 

Please email the five Senators (emails provided below),  who comprise the Senate Health and Human Services Committee and let them know that Nevada’s children need to access to life saving epinephrine in the event of an allergic reaction.Reactions can become life threatening within mere minutes and when a child can’t breathe the wait for an ambulance can be too long, especially in our more rural areas in the state.  In Reno, the average REMSA response time is 8 minutes and 36 second.  Imagine your child not breathing for 8 minutes, what could be the outcome for success?  I can’t even begin to wrap my brain around this thought.
If possible, tell our Senators why this bill will make a difference or what it means to you.  My daughter said that she is worried for her classmate who does  NOT carry epinephrine.  She scared of what could take place if her has a reaction.I worry for my children that if their Epi Pens are not given correctly or they require a second dose, I need the peace of mind that they have back up on site.
Just a few sentences are needed.  Legislators have very, very little time these days for reading!
For your reference, here is the link to the full  bill SB453, so you can read it:  https://nelis.leg.state.nv.us/77th2013/App#/77th2013/Bill/Text/SB453
Senator Justin Jones Justin.Jones@sen.state.nv.us
Please note that Senator Smith is our guiding light and the driving force behind the bill!  Maybe a simple note to her asking for her support would be great!  Senator Debbie Smith Debbie.Smith@sen.state.nv.us
Senator Tick Segerblom tsegerblom@sen.state.nv.us

Senator Joe Hardy Joe.Hardy@sen.state.nv.usSenator Ben Kieckhefer Ben.Kieckhefer@sen.state.nv.usPlease forward this to two or three others and ask them to let our Senate Health and Human Services Committee know that Nevadans want and need SB453.

Thank you for possibly saving the life a child!

We kindly request that you support SB453 in three easy ways!

1.  Email your representative and ask them to support SB453, which will require all public schools to maintain stock epinephrine (and authorize private) in addition to  authorizing use it if they believe a student is experiencing a life threatening allergic reaction (bee stings, food allergies, etc.).  This is crucial since ambulance response times in Las Vegas can be over 10 minutes and over 8 minutes in Reno, NV!
For students experience their first allergic reaction, stock epineprhine can be life saving in addition to providing back up support for students already carrying epinephrine in the event a second dose is needed.
Find your representative by clicking on this link and then clicking directly onto the map or in the upper right hand corner, entering in your physical address: http://mapserve1.leg.state.nv.us/whoRU/
A simple email, no longer than a few sentences will make all the difference.  For example, a simple, Please vote for SB453 Epinephrine in Nevada Schools would work!  Then share why this bill will make a difference (saving lives, no school deaths due to an allergic reaction, if a child is not breathing every single second counts, etc).
2. Take a simple Share Opinion on Legislative Bill Poll for lawmakers!  This is also very easy to do and only take seconds to complete.  Simply, check off that are you are FOR SB453 and then provide your address and contact data so they know which district you belong to.
3. Contact the members of the Health and Human Services Committee who are meeting this Thursday, April 4th at 3:30pm at the Legislature in Carson City and simulcast in Las Vegas in the Grant Sawyer building.  Either attend the meeting in support of SB453 or email each member and ask them to support SB453.
Better yet, please show support in person and by wearing light blue.  We will hand out stickers to be worn that day.

Below is contact email addresses (please note that a short message of gratitude would be welcomed for Senator Smith-she is the driving force behind this bill)

Senator Justin Jones Justin.Jones@sen.state.nv.us

Senator Debbie Smith Debbie.Smith@sen.state.nv.us

Senator Tick Segerblom tsegerblom@sen.state.nv.us

Senator Joe Hardy Joe.Hardy@sen.state.nv.us

Senator Ben Kieckhefer Ben.Kieckhefer@sen.state.nv.us

Thank you for making a difference and possibly saving the life a child!  Please share with family and friends and ask them to email and/or complete the poll!

Update: January 2013.  Sadly, this bill has died….for now.  As you know, us food allergy types don’t stop until we achieve our health related goals.  There is nothing more fierce that a mother or father working to protect and keep their child alive.  No lobbyist will ever match our passion.  We need to give a shout out to Senator Harry Reid and his staff for trying their best in the 11th hour to save this bill.  I will report more later in February!

Locally: we are working on bringing a similar bill to Nevada…again I will be posting more shortly and even more importantly, I will post ways that we can make a difference together!

The School Access to Emergency Epinephrine Act (S.1884 & H.R. 3627)…and what you can EASILY do

[typography font="Vollkorn" size="20" size_format="px"]The basic scoop:[/typography]   This bill encourages States to create law that allows schools to maintain “stock” epinephrine.  What this means to you and me is that a school would be able to keep epinephrine (an Epi Pen®) in their medicine cabinet along side bandages!  The epinephrine would be not prescribed for any particular student (or staff member) and would be available for all students if necessary.  It also calls for schools to permit personnel to administer epinephrine and release them of any liability!  In addition, States adopting such legislation will be given preference when applying for asthma related government grants (from the Department of Health and Human Services).  The use of epinephrine is not limited to food allergic reactions and encompasses all anaphylaxis and asthma events.

Click on this link and then type in the bill number you are searching for (i.e, S 1884 or HR 3627)

School Access to Emergency Epinephrine Act

[typography font="Vollkorn" size="20" size_format="px"]Why is this important to you and me:[/typography]   It will saves lives plain and simple.   In an anaphylatic situation the ONLY solution is immediate administration of epinephrine.  Period.  We have no choices.  Very unfortunately, Ammaria Johnson is now a reason as to why this is important-see my blog about her Ammaria’s food allergic death on the first day of school after winter break.  As a parent of food allergic and asthmatic children, I need their school to have back-up medications in case my children’s auto-injectors fail, are administered wrong or worse yet, emergency services are delayed and additional doses are needed.

[typography font="Vollkorn" size="20" size_format="px"]What’s the latest status of S.1884 & H.R. 3627: [/typography]  Anytime you can visit the Library of Congress’ Thomas link.  This site, named after Thomas Jefferson allows you to search for a bill by name or number or look up any legislative information for free and on-line. I like to use this link to search for bill status and resolutions.   My current understanding (as of Jan. 3, 2012) of S.1884 & H.R. 3627′s status is:  that On Nov. 17, 2011, Sens. Dick Durbin (D-IL) and Dick Durbin (D-IL) introduced the bill (S.1884) in the Senate.  On Dec 8th, 2011, Democratic Whip Steny Hoyer (D-MD) and Rep. Phil Roe (R-TN) introduced the School Access to Emergency Epinephrine Act in the House (H.R.3627).  Several states, including Illinois and Georgia, have already passed similar laws.

[typography font="Cantarell" size="20" size_format="px"]Who has co-sponsored this bill on Capital Hill[/typography]  (as of April 28, 2012):

In the House…

Rep Ackerman, Gary L. [NY-5] – 1/31/2012
Rep Bishop, Timothy H. [NY-1] – 2/17/2012
Rep Blackburn, Marsha [TN-7] – 3/27/2012
Rep Bucshon, Larry [IN-8] – 12/16/2011
Rep Burgess, Michael C. [TX-26] – 2/8/2012
Rep Gosar, Paul A. [NC-1] – 2/17/2012
Rep Capps, Lois [CA-23] – 1/31/2012
Rep Connolly, Gerald E. “Gerry” [VA-11] – 12/12/2011
Rep Davis, Susan A. [CA-53] – 1/31/2012
Rep DeGette, Diana [CO-1] – 3/19/2012
Rep DesJarlais, Scott [TN-4] – 2/6/2012
Rep Doyle, Michael F. [PA-14] – 4/24/2012
Rep Eshoo, Anna G. [CA-14] – 3/5/2012
Rep Filner, Bob [CA-51] – 4/27/2012
Rep Gosar, Paul A. [AZ-1] – 3/27/2012
Rep Green, Gene [TX-29] – 3/5/2012
Rep Hastings, Alcee L. [FL-23] – 3/29/2012
Rep Honda, Michael M. [CA-15] – 12/15/2011
Rep Hoyer, Steny H. [MD-5] – 12/8/2011
Rep Luetkemeyer, Blaine [NC-8] – 2/27/2012
Rep Lance, Leonard [NJ-7] – 3/8/2012
Rep Loebsack, David [IA-2] – 1/23/2012
Rep Luetkemeyer, Blaine [MO-9] – 3/5/2012
Rep Lujan, Ben Ray [NM-3] – 3/5/2012
Rep Markey, Edward J. [MA-7] – 1/17/2012
Rep McGovern, James P. [MA-3] – 2/6/2012
Rep McKinley, David B. [WV-1] – 1/23/2012
Rep McMorris Rodgers, Cathy [WA-5] – 1/31/2012
Rep Moore, Gwen [WI-4] – 1/31/2012
Rep Noem, Kristi L. [SD] – 2/1/2012
Rep Olson, Pete [TX-22] – 4/24/2012
Rep Payne, Donald M. [NJ-10] – 1/24/2012
Rep Platts, Todd Russell [PA-19] – 1/13/2012
Rep Ross, Mike [AR-4] – 2/17/2012
Rep Schakowsky, Janice D. [IL-9] – 1/31/2012
Rep Sessions, Pete [TX-32] – 12/15/2011
Rep Thompson, Glenn [PA-5] – 2/14/2012
Rep Towns, Edolphus [NY-10] – 1/31/2012
Rep Wasserman Schultz, Debbie [FL-20] – 2/6/2012
Rep Wilson, Joe [SC-2] – 2/14/2012
Rep Woolsey, Lynn C. [CA-6] – 2/6/2012

In the Senate…

Sen Alexander, Lamar [TN] – 11/30/2011
Sen Begich, Mark [AK] – 2/29/2012
Sen Bennet, Michael F. [CO] – 4/23/2012
Sen Blumenthal, Richard [CT] – 2/27/2012
Sen Burr, Richard [NC] – 1/31/2012
Sen Cardin, Benjamin L. [MD] – 2/17/2012
Sen Casey, Robert P., Jr. [PA] – 2/16/2012
Sen Chambliss, Saxby [GA] – 1/24/2012
Sen Cochran, Thad [MS] – 2/2/2012
Sen Corker, Bob [TN] – 12/8/2011
Sen Franken, Al [MN] – 3/5/2012
Sen Gillibrand, Kirsten E. [NY] – 3/26/2012
Sen Isakson, Johnny [GA] – 12/5/2011
Sen Kerry, John F. [MA] – 2/1/2012
Sen Kirk, Mark Steven [IL] – 11/17/2011
Sen Klobuchar, Amy [MN] – 1/31/2012
Sen Lautenberg, Frank R. [NJ] – 1/24/2012
Sen Merkley, Jeff [OR] – 3/13/2012
Sen Mikulski, Barbara A. [MD] – 2/29/2012
Sen Rubio, Marco [FL] – 2/7/2012
Sen Sanders, Bernard [VT] – 2/7/2012
Sen Schumer, Charles E. [NY] – 2/27/2012
Sen Shaheen, Jeanne [NH] – 3/8/2012
Sen Warner, Mark R. [VA] – 1/30/2012
American College of Allergy, Asthma & Immunology [RI] – 2/27/2012

[typography font="Vollkorn" size="20" size_format="px"]Who endorses this bill:[/typography]  National Association of School Nurses, the read H.R. 3627., the read S.1884, and the National Association of School Nurses.   In addition and of course, THE CHAMPION of the School Access to Emergency Epinephrine Act: How to Contact US Senators.

[typography font="Vollkorn" size="20" size_format="px"]The hard core details of the bill: [/typography]  Here is the link for you to read H.R. 3627.  Or to read S.1884.

[typography font="Vollkorn" size="20" size_format="px"]What you can do in your own State: [/typography] Contact your Senator and ask them to co-sponsor and support S.1884. You can find your Senator at this US Senator Link.   Visit this link on How to Contact US Senators, it offers great information such as when you email a Senator to include your postal mailing address, etc.  Check out this FAAN sample letter S1884 written by the Food Allergy and Anaphylaxis Network and get inspired to write your own letter (see Talking Points and Tips below).

[typography font="Vollkorn" size="20" size_format="px"]Talking Points and tips: [/typography] Check out this list of Food Allergy Advocacy Talking Points (from FAAN).  I also make it a point to keep my letters short and sweet as our elected officials receive huge amounts of correspondence daily.  Most important, I let them know that as my representative, I need them to do XXXX and then I explain my personal situation and story. 

[typography font="Vollkorn" size="20" size_format="px"]Hey Nevadans, this is what we are doing in these parts:[/typography]  We will soon begin writing and calling Senator Dean Heller soon to encourage his co-sponsorship S.1884, but not yet as we are waiting for the Senate to return to session.  Recently, Maria Acebal, CEO of the Food Allergy and Anaphylaxis Network met with Dean Heller’s staff to explain the bill so when he returns to DC, they will be prepared to speak to him.